Day 231 - Still Recovering · Feb 27, 01:36 AM by Dale
Hello folks, Patrick here.
Lives are busy. Dad is busy. I’m busy. Jessica is busy. And mom is still recovering. But you all need an update. I promised mom I would write one and so here I am with some time, at 1:30am local time, when I need to be up and at one of dad’s customers in just seven hours.
This blog is about the journey we’re going through, it’s meant to teach others and let others know what to expect. This is a real story about a real family going through a real life changing event. This isn’t Grey’s Anatomy or House or ER. No one day slapstick solutions.
Your body spends your entire life growing and manufacturing cells, what mom has gone through reduced her body’s industrial system to rubble and started fresh. It’s a slow process inherently. I mean, she spent mumble years getting to where she was and now we’ve forced her body to start anew. Not an easy thing to ask of anyone.
On this path to recovery there are going to be hitches and bumps. We would like to, or even love to, believe that it’s going to be as smooth as can be – but that’s just naivety speaking.
They weaned mom rather quickly off meds other patients spend years on. One of her friends, Jay, has been on the meds for over five years. And they tried to wean her off in less than a year. I don’t fault them for it, she was showing steady improvement and it seemed justified.
They’ve restarted her on the various meds and they’re beginning to work. Her rash is lessening and we believe her gut is slowly healing. One very interesting development has been that on Saturday when they did her blood tests, her numbers were unusually high. So high that we didn’t believe it. We don’t believe it. Or at least I don’t. I don’t know the counts exactly but several of the numbers, white blood cells for example, were in the normal range or very close to it. I’m waiting to see what today’s blood test reveals, if perhaps it was a rare spike or if there are other factors at work.
I’m sorry posts are infrequent, but as I said – we’re all a bit busy right now. I try to see mom everyday, usually it ends up being six out of seven days a week. Even if I just swing by for a half hour, I love spending the time with her. I firmly believe that while I can’t heal her or do what her medicine is doing; I can give her support and support is a key element to her recovery.
It’s growing late and I’ve said everything I need to say except thank you. Thank you all for your continued love, support, prayers and well wishes. We’re pressing ever onward in this long journey.
—Patrick and family
commenting closed for this article
Day 227 - Not feeling very good today. Day 234 ~ Still rough