Day 227 - Not feeling very good today. · Feb 23, 05:25 PM by Dale
Hi Guys,
It’s Chris. Sorry, Dale is not feeling well enough to post today.
They have confirmed that GvHD is present in the skin and upper and lower GI track and stomach as well. Seems MDACC in Orlando does not routinely look for GvHD since they are not a transplant center. We knew it had to be based on our Houston experience. Dale went in with the same symptoms at MDACC in Houston in September so we were fairly confident what was happening.
In any event, when the labs were questioned about their negative results, they went back and specifically looked for GvHD and found it in the skin, stomach and gut. Very frustrating as we knew and were wanting them to start the treatment for it. Instead, they needed a confirmation to start the steroids, anti-rejection meds and other meds as well.
Short version is they are now treating for GvHD but we are somewhat behind and it will take a week or so to get it under control.
Today Dale is sick at her stomach, weak, and has diarrhea pretty bad. This has been going on for some time. They are now aggressively treating the diarrhea as well as the other.
We would appreciate your prayers. Hope Dale feels better tomorrow so she can write an entry. Chris
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