Day 223 Latest activity · Feb 19, 11:42 AM by Dale
From Dale this morning:
Hi All,
Had this idea to try to send you a daily update. Just the facts of what’s happening.
One week in the hospital today.
Could not eat breakfast again. Had half a cup of cranberry juice and some hot tea.
Visit from Internal Medicine doc who admitted me. Commented the rash looks better on my face.
Visit from ID intern. She precedes the regular doctor and does a simple physical – listens to heart and lungs, looks me over for new rashes, etc.
Had a PICC (peripherally inserted central catheter) line put in. My veins have been damaged by all the steroids so drawing blood and receiving meds has been pretty awful. One day we had four different people stick me 10 times before they got something to work. The PICC is similar to Mr Chuckles except it is inserted in my arm, just above the elbow and a catheter runs up my arm, through the armpit and into my chest. They prefer this over Mr. Chuckles because they don’t have to pierce the chest wall to put it in. I guess this one will be called Piccles?
Someone from x-ray came to take a picture to make sure Piccles is in the right place. I love that they do this in my bed and I don’t have to be schlepped through the hospital. Waiting on confirmation from them so we can start using the line.
My oncologist visited. Disagrees with some of the other docs on drugs they are giving me. Is going to have a conversation with Dr Champlin today to go over everything. According to the local doc, the skin biopsy was negative for GvHD – I had thought it was “inconclusive.” So now we are waiting for results of the colonoscopy that was done on Saturday to see if GvHD of the gut is present.
Started testing glucose today as the steroids I am back on have already elevated my blood pressure and blood sugar.
Think that covers today so far. And it’s only noon. Should quiet down a bit now. God bless you all.
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Day 220 - Looks like GVHD again! Day 227 - Not feeling very good today.